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Author Archives: Aniridia Network
Serena and Violet with aniridia and thier mums make friends
I met Dawn and Serena at an event held at Eureka Museum in Halifax aimed at visually impaired children. I recognised her from an Aniridia Network UK conference we had both attended in previous years, So I approached her to … Continue reading
Report on long-term results of artificial iris implants
A review of 34 patients with congential, traumatic iatrogenic aniridia who had surgery to implant artificial irises has found: No repositioning of prostheses was necessary. In cases of keratopathy (17.6 %) visual function increased from baseline mean. The remaining iris … Continue reading
Hannah’s rare story
Today is the rarest of days , so what better day to raise awareness of rare conditions and the people that live with them every day. I am 1:47,000 which makes this 1:1401 day (365×4+1) sound common. What makes me … Continue reading
Thanks to Dassault for technical donation
A big thank you to Dassault Systems for donating audio-visual equipment to Aniridia Network UK. Tony and colleagues, working in Warrington took part in a challenge to buy an item for up to £200 for a charity. He remembered our Christmas … Continue reading
London meet up 2015
We’re had an informal get together in Kensington on today. Ten people came along to for coffee and chat about aniridia. This included people of all ages who have it and parents of those who do. It was held as a … Continue reading
Review of Newcastle Conference 2015
By Sarah, part of the Conference committee Preparing and planning Organising for a conference is a bit like making a large purchase. You do your research, ask people who can help and enlist the help of a friend or two, Once you … Continue reading
A strong child and a great council visual team
I feel I need to share this with you all. My daughter was diagnosed with aniridia at 6 months old and has grown from strength to strength. She is now 6 years old and each day she surprises me with … Continue reading
Help with conference costs
The cost of travelling to and attending our events is a big issue for some people. A family in Wales who receive support from their local integrated team for disabled children (social services) found a solution. They asked their social worker … Continue reading
Francesca’s student life
This article by Francesca is about finding her feet in her first year at uni and a few pointers for anyone who’s heading there in the next few weeks, from her perspective. Francesca has aniridia and writes in Brighter Futures … Continue reading
Thousands raised for aniridia research and support
Hardy cyclists tackled a 100-mile bike ride to raise more than £10,000 for crucial eyesight-saving research, inspired by Ella a girl who has aniridia as part of WAGR syndrome and is also deaf. A 22-strong team, led by Ella’s dad … Continue reading
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