So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / Instagram. People who cannot see well and children may need help taking the picture.
Alongside that please make a donation to Aniridia Network UK. Donate online, regularly if you can or just txt iris005 to 70070 to give £5.
Please write the message below with your IrisSelfie, customising it as you wish
To maximise awareness and fundraising we need this campaign to go viral. Challenge your friends and family to do the same by @mentioning them in your post.
If you cannot donate, support us in other ways. We badly need volunteers to accomplish all the things we’d love to do to help people with aniridia.
We are started the #IrisSelfie idea on Rare Disease Day, 28 February 2015. The day is an initiative to bring together people affected by rare medical conditions, such as aniridia.
In that spirit we have run the initiative with our friends at Aniridia Foundation International. They helped make it an amazing world-wide success. Aniridia associations in other countries are very welcome to get involved by adapting the campaign for themselves.