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Tag Archives: fundraising
Take a (No) #IrisSelfie to raise awareness and funds for aniridia
We want to raise awareness of aniridia, help those who are visually impaired because of it, and support treatment research. So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / … Continue reading
Posted in Campaigns, Fundraising, Patients' tales
Tagged fundraising, IrisSelfie, rare disease, rare disease day
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Drug company donates £1,000 to ANUK
A global biopharmaceutical company has provided a donation to ANUK for which we are extremely grateful. PTC Therapeutics is the company that discovered and is developing ataluren for the treatment of disorders due to a genetic nonsense mutation. Approximately 20% of patients … Continue reading
Posted in Aniridia Network news, Fundraising, Research
Tagged ataluren, donation, fundraising, ptc
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Change to how you can help ANUK by shopping on Amazon
There is an easy ways to raise money for us simply by shopping on Amazon.co.uk. It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading
Marina wins £250 in our Christmas raffle
The first Aniridia Network UK nationwide raffle took place in November. Congratulations to Marina in London who scooped the prize of £250 worth of Love 2 Shop vouchers.. Marina is mum to young Cormac who has sporadic aniridia. Liz, our Fundraising … Continue reading
Buy tickets in our Christmas raffle
We decided that the generous donation of £250 in shopping vouchers earlier this year merited a special prize draw to raise funds for our future activities. In these difficult times we thought a pre-Christmas financial boost for the winner would be … Continue reading
Harry’s marathon raises £900 for ANUK
Harry is the brother of our Chair Katie and is a keen runner. He has always wanted to run a marathon and managed to get a place on the event in York. Aniridia Network UK was, of course, his charity … Continue reading
A different way to see the sights of London
By Sarah Are we gluttons for punishment or just determined to prove it wasn’t a fluke? Lorna and I have been off round London again in aid of research into aniridia. We did the Carrot NightWalk in London yesterday. This time our starting … Continue reading
Sarah’s Carrot Night Walk 2014 for aniridia research
By Sarah Hargraves I’ve been in training again. As last year, to help improve funding for aniridia research, I’m doing the 15 mile Carrots Night Walk. It’s0 in London on 19 September in the dark!. I’m doing the walk in … Continue reading
1 mile open water swim in aid of aniridia
Sunday 16th February 2014… 12.30pm I got the phone call I had been waiting for. My sister, my best friend had gone into labour and was due to give birth to my nephew. As a mother myself having given birth … Continue reading
Walk through London at night raises £742 for aniridia research
I’m a reasonably happy walker. Five miles or so can be very pleasant on a nice day. Also, I know people who’ve done the Moonwalk for breast cancer, who I didn’t think were necessarily much fitter than I was, at least with the … Continue reading
Posted in Aniridia Network news, Fundraising, Research
Tagged Fight For Sight, fundraising
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