Tag Archives: European Aniridia Conference

Taking part in the European Aniridia Leadership Academy – Good things come to those who hustle

Posted on Dec 23, 2024 by Aniridia Network

Haya Hassan is a 25-year-old woman from Wiltshire with sporadic aniridia. She graduated from university 2 years ago and has since been working in different charities, including a major UK sight loss charity. Some of her interests include reading, travelling … Continue reading →

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18-30? Apply for the 3-day aniridia academy in Stockholm

Posted on Dec 19, 2023 by Aniridia Network

We have a great Christmas present and new year offering for you.But you need to act quickly to have a chance to take it! We want to help 18-30 year olds with aniridia kickstart your careers, advance your studies or … Continue reading →

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Tickets for European Aniridia Conference 2024 selling out

Posted on Dec 17, 2023 by Aniridia Network

There has been a very demand for the places at the 7th European Aniridia Conference, in Stockholm, Sweden. That is fantastic and very promising, but unfortunately they are running out of tickets. Book now if you want to attend. Including … Continue reading →

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6th European Aniridia Conference

Posted on Jun 5, 2022 by Aniridia Network

By Claire My daughter Laura, who has aniridia, and I set off for the conference early on Friday 3rd June to join other families seeking more information about this rare condition that many health professionals are unaware of. How heartening to … Continue reading →

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5th European Aniridia Conference

Posted on Aug 1, 2021 by Aniridia Network

We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading →

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Send Christmas cards by aniridics to fund treatments conference

Posted on Dec 8, 2019 by Aniridia Network

Are you planning to post Christmas cards to your friends and family? We suggest you send our e-cards instead and tackle aniridia too! The cards even have lovely designs by children from around the world who have aniridia. Send us your design … Continue reading →

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Five go to Paris for European Conference on Aniridia 2018

Posted on Aug 26, 2018 by Aniridia Network

Five members of Aniridia Network travelled to Paris for a conference about the science and treatment of aniridia. They met the world’s top experts on aniridia and learned about their latest research and techniques. They also took part in a … Continue reading →

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1st European Conference on Aniridia: Day 3

Posted on Jun 10, 2012 by James

Day 1 and day 2 had been the scientific conference. Today was for a wider audience: those affected by aniridia.  There were a series of short presentations, alternating between Norwegian and English. The English ones were slightly simplified, shortened versions … Continue reading →

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1st European Conference on Aniridia: Day 2

Posted on Jun 10, 2012 by James

Saturday was full of presentations from various doctors and researchers. Professor van Heyningen gave two talks about the genetic aspects of aniridia. This included looking at the full range of the effects of PAX6 mutation, plus aniridia without PAX6 mutations … Continue reading →

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1st European Conference on Aniridia: Day 1

Posted on Jun 9, 2012 by James

The hotel’s breakfast buffet was certainly broad but not quite enough to include staple English breakfast elements such as bacon and hash browns or fried bread. It was sautéed potatoes and mini sausages instead. After breakfast I took a walk … Continue reading →

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