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Category Archives: Patients’ tales
Protected: On your bike
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Posted in Parents' accounts, Patients' tales
Tagged achievements, sport
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Sinead’s introduction
Hi, my name is Sinead. I am 29 years old. I have aniridia, nystagmus, coloboma, and glaucoma. I am registered blind as I have only have 5% vision. I live in the Republic of Ireland and am the country’s first … Continue reading
Protected: See what we can do
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RNIB Phone Watch
I’ve always had a bit of a quandry with my mobile phone. I don’t really need to use a screen reader with but struggle just enough to discourage me from using the internet on it. So I’ve never gotten a … Continue reading
Katie’s introduction
I was born in 1983 with sporadic aniridia and also have nystagmus, cataracts, glaucoma and aniridic keratopathy. I am registered partially sighted. I live in Sheffield with my partner. My hobbies include ice skating, walking and reading.listening to audio books. I am/was … Continue reading
Andrew’s Central Auditory Processing Disorder
I was born with congenital aniridia (sporadic) and nystagmus. At school I struggled and was regarded as being dyslexic. Then after leaving school and going to college I was told that I was not dyslexic. I could not understand why this was, but … Continue reading
Protected: Mary’s annual mobility training
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Returning to Moorfields for testing time
I just went for an appointment at Moorfields Eye Hospital for the first time in 15 years. When I became an adult and left London for university, Moorfields said I didn’t need to keep coming to them. Instead I could … Continue reading
Trying to obtain melatonin
During my visit to the National Institute For Health (NIH) in 2009 to participate in the WAGR/11p Deletion Syndrome research, one of the findings was that I had a smaller than average pineal gland. The NIH research and previous studies … Continue reading
Recruiting guide dog Connie
After retiring my guide dog Sandie I received an e-mail asking if I would be prepared to consider a German Shepherd as they have very different temperaments and need different handling to the two labradors I have had before. I … Continue reading
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