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Category Archives: Patients’ tales
Andrew’s Central Auditory Processing Disorder
I was born with congenital aniridia (sporadic) and nystagmus. At school I struggled and was regarded as being dyslexic. Then after leaving school and going to college I was told that I was not dyslexic. I could not understand why this was, but … Continue reading
Protected: Mary’s annual mobility training
There is no excerpt because this is a protected post.
Returning to Moorfields for testing time
I just went for an appointment at Moorfields Eye Hospital for the first time in 15 years. When I became an adult and left London for university, Moorfields said I didn’t need to keep coming to them. Instead I could … Continue reading
Trying to obtain melatonin
During my visit to the National Institute For Health (NIH) in 2009 to participate in the WAGR/11p Deletion Syndrome research, one of the findings was that I had a smaller than average pineal gland. The NIH research and previous studies … Continue reading
Recruiting guide dog Connie
After retiring my guide dog Sandie I received an e-mail asking if I would be prepared to consider a German Shepherd as they have very different temperaments and need different handling to the two labradors I have had before. I … Continue reading
Retiring guide dog Sandie
Some of you may remember the daily diary I did on the Aniridia Network International Yahoo group about my guide dog training with Sandie. That little pint sized yellow labrador is now 8 and has been working for just over … Continue reading
Taking part in research into aniridia, hearing and memory
In the Summer 2010 Aniridia Network UK newsletter there was a call to take part in research into the effect of the aniridia gene (PAX6) on the parts of the brain that deal with hearing and memory. Having done some … Continue reading
Posted in Patients' tales
Tagged auditory processing disorder APD, hearing, memory, research
1 Comment
James’s introduction
I’m James, a born (1979) and bred Londoner. I have sporadic aniridia. My vision is (6/24 6/36) and I’m a trustee for Aniridia Network UK. Continue reading
Jenny’s introduction
I currently live in Devon with my guide dog Jaynie. I was born with aniridia as part of WAGR syndrome. I have most of the associated eye conditions that go with aniridia, including cataracts, glaucoma, nystamgus, corneal thickness/scarring and have … Continue reading
Protected: Jenny’s career – Part 1: Entering the world of work
There is no excerpt because this is a protected post.
