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Author Archives: Aniridia Network
Conference 2011 review
The Aniridia Network UK conference 2011 was on 14 May. It was a big success. Newcomer Jane said “The highlight of the day for me was definitely being able to meet other parents of children with aniridia, sharing experiences with those … Continue reading
Protected: Mobility session report from Conference 2011
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Posted in Education professionals sharing, Other agencies
Tagged Conference, mobility
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Central Auditory Processing Disorder presentation
Central Auditory Processing Disorder ([C]APD) affects learning has been linked to the same gene which causes aniridia. Expert Dr Doris Bamiou talked and answered questions about it at our 2011 conference. Below are the slides and a recording of her … Continue reading
Pig & Pimms Garden Party in aid of Shine The Light On Aniridia
By Elly Chappele Shine The Light On Aniridia has been been raising funds to enable research for a cure for Aniridia to begin this year. we hope, at Moorfields Eye Hospital in London under Dr Julie Daniels and her team. … Continue reading
We are now an official charity
Aniridia Network UK is extremely pleased to announce that we have been recognised as a charity. Our reference number is XT26830. It is a big step forward as it gives us an additional level of respectability and other benefits. HM … Continue reading
Bring rare diseases to the attention of your local politicians
Aniridia Network UK recently joined Rare Diseases UK, an alliance of industry, patient organisations and individuals developing strategic planning for rare diseases in the UK. The European Union defines a rare disease as a disorder which affects 1 in 2000 … Continue reading
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Protected: 2011 Annual General Meeting and trustee’s plans
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Posted in Aniridia Network news
Tagged Conference, strategy, trustees
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Diagnosis difficulties – a father’s experience
Fuad and daughter Shakila If you follow Aniridia Network UK on Facebook you may have already read the story of Fuad and his daughter Shakila featured in these articles Article in The Voice Article in The Standard Article in The … Continue reading
Posted in Parents' accounts
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A new mutation
Aniridia Network UK is proud to launch its blog. As its name suggests the this is a place for people in the UK, who have or are connected to the eye condition aniridia. We want such people to contribute here, … Continue reading
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