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Author Archives: Aniridia Network
Manchester for annual meeting 2012
Manchester, Saturday 19 May 2012 – put it on your calendar right now. That’s where and when the next big Aniridia Network UK meeting will be. It is your chance to hear from and ask questions in person to: people who … Continue reading
Charity strategy update
Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading
Posted in Aniridia Network news, Fundraising
Tagged charity, fundraising, meeting, membership, strategy, trustees, volunteering
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Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Harry wins teen “Caring For Others” award
A boy with aniridia has won an award for his caring nature. Harry, 16, from the Exeter area won the “Caring For Others” category in the Teen Awards run by the Exeter Express & Echo newspaper. The awards “show that teenagers … Continue reading
Fact check on Daily Mail piece about teenager with WAGR/11p deletion syndrome
A recent Daily Mail article aroused our interest. The piece features Gemma who has WAGR, also known as 11p deletion syndrome after its genetic cause. It includes aniridia among its possible symptoms. We were glad to see a national newspaper … Continue reading
Posted in Medical staff talking, Other agencies
Tagged cancer, IWSA, pancreatitis, press, WAGR
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At school with aniridia
My name is Abbie-Rose and I am 14 years old which means I’m in year 9 at school. I live in Norwich and I have aniridia, nystagmus and a cataracts. I also have an auditory processing disorder (APD). My brother, … Continue reading
Posted in Patients' tales
Tagged auditory processing disorder APD, LVAs, school, teaching assistant, white cane
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Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Protected: On your bike
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Posted in Parents' accounts, Patients' tales
Tagged achievements, sport
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New approach to keratoplasty may be better for patients with iris implants
A study has found that Descemet’s stripping endothelial keratoplasty (DSEK) can be better than penetrating keratoplasty in eyes with an artificial iris. In eyes with partial or complete aniridia it helps restore clarity of corneas and may mean quicker improvement … Continue reading
Aniridia Network UK is founding member of new Aniridia Europe organisation
Aniridia Network UK are very pleased to announce the creation of Aniridia Europe, a federation of aniridia patient associations, support groups and individuals from across Europe. We have been collaborating with colleagues from across Europe for the past few years. … Continue reading
Posted in Aniridia Network news
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