Conference 2011 review

The Aniridia Network UK conference 2011 was on 14 May. It  was a big success. Newcomer Jane said “The highlight of the day for me was definitely being able to meet other parents of children with aniridia, sharing experiences with those at the same stage and receiving wisdom from those who have already ‘been there’. Also, being able to ask honest and open questions of people who have aniridia themselves and to know that there are so many people out there who would be willing to chat to my daughter and support in her journey.”

The agenda included:

Mobility

Explanation of the work done by the habilitation specialists at Priestly School – an an all age specialist centre for pupils with severe sight loss.

Auditory processing disorder

This condition which affects learning has been linked to the same gene which causes aniridia. Expert Dr Doris Bamiou talked and answered questions about it.

WAGR/11p deletion syndrome

A session for discussions and talks from professionals. People coming for this are welcome to join in the morning aniridia meeting or physical activities and lunch if they wished.

Physical activities

The venue was Ackers an outdoor adventure centre. To make this 10th anniversary meeting better than ever we organised archery and climbing sessions to give time to socialise while having fun. They were supervised by staff experienced at both the activities and dealing with disabled people.

Advertisements

About Aniridia Network UK

A charity support group for people with the genetic visual impairment aniridia and their families in the UK. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. Registered as a charity in 2011 with HMRC reference XT26830
This entry was posted in ANUK news and tagged . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s