The Aniridia Network UK conference 2011 was on 14 May. It was a big success. Newcomer Jane said “The highlight of the day for me was definitely being able to meet other parents of children with aniridia, sharing experiences with those at the same stage and receiving wisdom from those who have already ‘been there’. Also, being able to ask honest and open questions of people who have aniridia themselves and to know that there are so many people out there who would be willing to chat to my daughter and support in her journey.”
The agenda included:
Explanation of the work done by the habilitation specialists at Priestly School – an an all age specialist centre for pupils with severe sight loss.
Auditory processing disorder
This condition which affects learning has been linked to the same gene which causes aniridia. Expert Dr Doris Bamiou talked and answered questions about it.
WAGR/11p deletion syndrome
A session for discussions and talks from professionals. People coming for this are welcome to join in the morning aniridia meeting or physical activities and lunch if they wished.
The venue was Ackers an outdoor adventure centre. To make this 10th anniversary meeting better than ever we organised archery and climbing sessions to give time to socialise while having fun. They were supervised by staff experienced at both the activities and dealing with disabled people.