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Author Archives: Aniridia Network
Paul, aniridia and sports
I was born with aniridia and did the usual sports at comprehensive school. I was the only disabled person there never mind the only visually impaired pupil there. I never really liked playing rugby, football or cricket for the obvious … Continue reading
PAX6 and the Cornea: An Eye to the Future
One of the speakers at this year’s conference was Thanos Papadimitropoulos from University of Liverpool. He told us about his team’s research, funded by Fight for Sight, into a potential new therapy that may one day be able to slow down or … Continue reading
Annual General Meeting 2018
The first Annual General Meeting of Aniridia Network, a charitable incorporated organisation was held at: Resource For London, 356 Holloway Road, London, N7 6PA on 14 April 2018 at 11:00am Continue reading
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Tagged AGM, Annual General Meeting, charity, meeting, registration
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Annual Report 2017-2018
Details of what our officials did between April 2017 and March 2018 are in the Aniridia Network Annual Report 2017-18. There is also the Aniridia Network Financial Reports 2017-18. These were presented at the Annual General Meeting on 14 April … Continue reading
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Tagged AGM, Annual General Meeting, annual report, meeting
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Our first grant for UK research into aniridia
We are thrilled to announce a grant for research into aniridia! Aniridia Network UK has partnered with charity Fight For Sight to each contribute half the money to a £15,000 grant. The money is only available to UK academic or medical institutions. Get more … Continue reading
Charity registration achieved
From today Aniridia Network has full charity status. This is excellent and exciting! It means we have more potential to get funds and support, leading towards being able to do much more. Previously we were only registered with HMRC as a charity … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, charity, meeting, registration
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Toys for visually impaired children
It is not always easy to know what toys to buy a child with a visual impairment, so here are some thoughts and ideas to help you. Continue reading
Blossoming at college
I wanted To share a very special week with you all. My daughter who has aniridia performed at her first college dance performance this week. She was amazing. She reduced me to tears she was memorising honestly. To all those worried … Continue reading
Boxing Fundraiser for ANUK
David Simpson has taken part in the Judgement Day charity boxing contest at the York Hall arena in Bethnal Green, London. The event itself was raising money for Action for Children, but each boxer could also raise money for the charity … Continue reading
London meet-up 2017
This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading
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