-
Support us
Author Archives: Aniridia Network
Blossoming at college
I wanted To share a very special week with you all. My daughter who has aniridia performed at her first college dance performance this week. She was amazing. She reduced me to tears she was memorising honestly. To all those worried … Continue reading
Boxing Fundraiser for ANUK
David Simpson has taken part in the Judgement Day charity boxing contest at the York Hall arena in Bethnal Green, London. The event itself was raising money for Action for Children, but each boxer could also raise money for the charity … Continue reading
London meet-up 2017
This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading
Changing our name
We are planning to change our name! We intend to drop the ‘UK’ and simply be ‘Aniridia Network’. The main reason is to be inclusive for people affected by aniridia in Ireland, and there are other benefits too. We want … Continue reading
Attending the Genetic Alliance Conference 2017
Today Genetic Alliance held their Annual Conference in London, entitled “Upskilling Our Members”, with many charities taking part. Aniridia Network trustee James Buller attended the event, taking the opportunity to engage with many leaders of charities very similar to our … Continue reading
New Treasurer and bank
We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading
400km in 1 day fundraising bike ride
Matt rode his bike 408 miles from London to Worcestershire and back again, in one day to raise money for Aniridia Network UK. He set out at sunrise and rode as the temperature soared to 40°C. He retuned 15 hours … Continue reading
Aniridia poem competition UK results
We are elated to announce the winner plus the awarding of a special prize in our Aniridia Day related poetry competition. “I was impressed with the outstanding talent.” said judge and new trustee Emily. We were delighted to receive 10 … Continue reading
Posted in Campaigns, Parents' accounts, Patients' tales
Tagged Aniridia Day, AniridiaPoem
3 Comments
Golden wedding celebration fundraises £95
Being married for 50 years is an achievement. This is the milestone that my parents achieved in March this year. My father has aniridia (as to the best of our knowledge did his father), as did his brother. When my … Continue reading
Win up to £40 in the aniridia poetry competition
Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading
Aniridia Network 