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Author Archives: Aniridia Network
Bursary for UK professionals to attend European Aniridia Conference 2026
Aniridia Network is offering to fund UK professionals to take part in this year’s European Aniridia Conference (EAC), 17-19 April in Sofia, Bulgaria. EAC enables the sharing of scientific knowledge about the rare genetic eye condition aniridia. Its goal is … Continue reading
Posted in Aniridia Network news, Research
Tagged European Aniridia Conference, grant
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Management of glaucoma associated with aniridia
Talk by Mr John Brookes, Moorfields Eye Hospital, at Conference 2025 A presentation about aniridia issues, particularly regarding how glaucoma is treated in children and adults with aniridia, from medical to laser and surgery. Mr Brookes trained in London and … Continue reading
Posted in Medical staff talking
Tagged Conference, Conference 2025, event, glaucoma, John Brookes, meeting
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Can access to station information improve train travel for people with sight loss?
Talk by Emily Nash, Coventry University, at Conference 2025 Emily Nash is currently completing a PhD in improving access to train travel for people with sight loss. Her research is looking to identify and understand what barriers currently exist, and … Continue reading
Privilege, Protest, Power
Talk by Elliott, person with aniridia at Conference 2025 “Identifying privilege, embracing protest and challenging power have all been integral to a journey these 25 years that I could not have imagined. “Fighting for a seat at the table for … Continue reading
Grow your skills, meet new people and help the aniridia community
Are you or someone you know: If ‘Yes’: Come to Bulgaria in April 2026 for the ‘European Aniridia Leadership and Collaboration Academy‘. We’re seeking people with and without aniridia to join a 3-day event aiming to raise your: Practical workshops … Continue reading
Exploring PAX6 related gene regulatory networks & its role in the developing brain
Talk by Samuel Heczko & Dr. Wai Kit (Calvin) Chan, University of Edinburgh at Conference 2025 We all come from a single cell. But how does this cell know when and how to divide into a brain? And how does … Continue reading
Conference 2025
“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading
Posted in Aniridia Network news, Medical staff talking, Patients' tales, Research
Tagged Conference, Conference 2025, event, meeting
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Annual General Meeting 2025
The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, was held online on 1/11/2025. Read minutes and watch a video. Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2025, meeting, trustees
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2025 Volunteer Awards
We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our … Continue reading
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