We know it can feel like you are navigating the challenge of having a rare disease alone. So let’s come together to make a difference and empower each other.

Ask questions and hear from people who will share insights into living with aniridia. Tell of your own similar experiences and challenges.

Whether you’re a patient, caregiver, researcher, educator or doctor, trustee James warmly invites you to join him at the times and places below.

Invite and bring along friends, family, and anyone who might benefit from joining us.

London, Earls Court (Sight Village), Tuesday 27 October

After the excellent Sight Village exhibition of services and gadgets for visually impaired people, we’ll find the hotel bar in the same building to chat. Come for the afternoon or later in the evening.

Sign up for the London meet-up and add it to your calendar

Blackpool, Saturday 30 October

Enjoy an autumn visit to the seaside. We are having lunch at the Platform 9 cafe bar opposite the main train station. Come for aniridia and stay for the arcades, trams and festival of lights!

Sign up for Blackpool meet-up and put it in your diary

If you would like to meet people with aniridia in your area, find a suitable place and time, then contact us to advertise the details for you.