Young people with aniridia needed for sleep research

Scientific intrument that looks similar to a digital wrist watch

An actigraph, worn on the wrist

Scientists want adolescents and young adults to take part in a study to learn more about how an aniridia-related gene affects sleep.

Are you the kind of person they are recruiting?

  • aged 10 to 20 years old with aniridia
  • medically stable
  • do or do not have a sleep disorder
  • not taking or able to stop taking sleep medication for 2 weeks.
Multicoloured graphs

Output from an actigraph

Participation involves wearing a watch-like activity monitor called an actigraph on the wrist for 7 days and completing a sleep diary. 

The researchers are based in the USA. However the study is open to people in the UK and there is no need to travel to take part. There is no cost to participate, and volunteers will be compensated for their time. Minors will require parent/guardian permission.

For more information contact Alyson E. Hanish, MSN, RN:
Phone from the UK: 00 1 301 451-7163

National Institute of Child Health and Human Development (NICHD)
National Institutes of Health
Building 10, Room 2-3145
10 Center Drive
Bethesda, Maryland 20892 

Find out more about about clinical trials at NIH.

Read about the research into aniridia and WAGR that this follows on from and which several members of Aniridia Network UK took part in.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
This entry was posted in National Institute for Health WAGR study, Research and tagged , , , . Bookmark the permalink.

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