Beth@NIH 3: Numbers, Words and Numbers I

I got up and came over to my room and ordered breakfast so that I could eat and get to my 9am appointment. Unfortunately it didn’t turn up until 9am so Shannon helped me carry the pancakes and my two cups of english tea (I brought my own teabags! lol) down to the testing room.

The neuropsychological testing looks at things like IQ, memory recall, mood and emotions, and other tasks such as being able to define words and remember facts given to you in a story. The testing lasted 4 and a half hours and we did lots of tests and had a good discussion about my mental health which was heavy going but she might do some more measures with me to confirm or eliminate my current diagnosis.

After that test I ordered my lunch which again didn’t come until I had left for my next appointment which was with the physiotherapist at rehab. He recovered my orthotics and they are now very spongey and he showed me some good ways of stretching which I’m not ready yet until my tendon has healed. He also showed me some balance exercises. I will meet with him once more hopefully after I have had my ankle MRI’d so he can give me some advise about how to look after my ankle. It could mean I’m off running for a while which is really frustrating as I am supposed to do the Great North Run and I might end up having to walk it which would be a huge disappointment for me. Especially since last year I got a chest infection which stopped me running it.

The next test was nerve conduction where they attach electrodes to certain places on your limbs and send an electric current down the limb to the electrodes stimulating your nerves. It was supposed to be painful but I couldn’t stop laughing the shock itself stung a little but as it travelled down my arm it was warm and tingly. Apparently it wasn’t as good as ‘The Wiggles’ which was an earlier show they had. lol. My peripheral nerves are all in good working order which is the way they should be. I think they believe the WAGR patients have some nerve damage from the chemotherapy and that is why they test everyone.

I then came back and had a cold lunch and a very small tea and after some discussion was allowed on the recreational therapy bus trip. They had decided it was too hot to let people walk round the monuments so they had decided to do a bus tour. If it was the walk I wouldn’t have been able to go as the staff were not prepared to let me link arms. Although I couldn’t see anything out of the bus of any note it was interesting hearing the facts about the history of the NIH and of Washington. The lady said 5,000 people work in building 10 (the hospital) alone and there are over 70 buildings on the campus. We passed the british embassy where there is apparently a statue of winston churchill. We also passed the greek embassy which got a huge cheer from the big group of 10 greeks on board the bus! I took a picture in the general direction of the white house and the capitol building but I won’t know how they have come out until I get home. The more she talked the more I wanted to get off the bus and look around! We stopped at the Lincoln Memorial and I went to have a look. It is a huge building. I tried to get inside but almost walked into a glass window and gave up and went back to the bus. Unfortunatley none of the fellow patients were friendly enough to tag along with but I did try to chat to them.

I got back very tired and went straight to bed but got a phone call to say I will be having visitors later today! Woo hoo! I can escape and get some hot food that arrives on time! The food here isn’t too bad but you do need to eat it fresh.

About Beth Dawes

I have no eye colour but I do have an iPad, a guide dog called Annie and a pink long cane.
This entry was posted in National Institute for Health WAGR study, Patients' tales and tagged , . Bookmark the permalink.

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