Tag Archives: volunteering

Grow your skills, meet new people and help the aniridia community

Are you or someone you know: If ‘Yes’: Come to Bulgaria in April 2026 for the ‘European Aniridia Leadership and Collaboration Academy‘. We’re seeking people with and without aniridia to join a 3-day event aiming to raise your: Practical workshops … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , , | Leave a comment

2025 Volunteer Awards

We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , | Leave a comment

New Medical Advisors

We have appointed two distinguished medical experts to continue our support for the aniridia community. Mr John Brookes and Professor Mariya Moosajee are now our medical advisors, ready to respond to enquiries from our members and their families. Both are … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , , , | Leave a comment

2022 Volunteer Awards

We rely completely on the brilliant people who use their spare time and skills to run our charity. We are so thankful for the efforts of all our volunteers and hence what they get done for our beneficiaries. To aknowledge … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , | 2 Comments

2021 Volunteer Awards

We would be nothing without the amazing people who give up their time and use their skills to run our charity. We are extremely grateful for all our volunteer’s efforts and what they achieve from them for our beneficiaries. To … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , , , | Leave a comment

Join our trustee team in 2021/22

Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , , , , | Leave a comment

Our soapy gift to volunteers

We’ve said thank you for the great efforts of our volunteers by giving them soap. We also sold some to members to raise money. There’s a nice little story behind this oddity. The liquid hand soap is made by visually … Continue reading

Rate This

Posted in Aniridia Network news, Fundraising | Tagged , | 2 Comments

How I See & Building My Social Network

My name is Glen, I’m 34 and I was born with aniridia and nystagmus. I recently gave a brief description of these conditions in this video for the RNIB’s How I See campaign, which has been shared widely and had a … Continue reading

Rate This

Posted in Patients' tales | Tagged , , | 1 Comment

Call for Aniridia Network Ireland

By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading

Rate This

Posted in Aniridia Network news, Patients' tales | Tagged , , , | 3 Comments

Just when you thought it was all over

You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading

Rate This

Posted in Aniridia Network news | Tagged , , | 1 Comment