83% of people with aniridia also have nystagmus (‘wobbly eyes’). It is a factor in how much vision these people have.
Here is an opportunity to contribute to research in to nystagmus.
Nystagmus affects quality of life in all sorts of ways, but no-one has ever measured its impact before. A researcher at University of Leicester is doing just that with a quality of life questionnaire that is specific to nystagmus.
If you’re over 16, have nystagmus (with or without aniridia too) and you live in the UK you can help by answering the questionnaire. It has to be done on paper and will take about 30 minutes to complete.
To get the questionnaire, email Rebecca McLean firstname.lastname@example.org with your postal address and saying you would like to take part in the nystagmus quality of life research. She will then post you the survey, consent form and information explaining the project.
For more about nystagmus visit the Nystagmus Network.