Tag Archives: meeting

Conference 2024

We held this great event online and it was completely FREE to attend. We had a great line up of speakers, to talk about aniridia related themes. From personal experiences to cutting edge research, education and leadership – something for … Continue reading

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Posted in Aniridia Network news, Education professionals sharing, Medical staff talking, Patients' tales, Research | Tagged , , , , , | 1 Comment

Conference 2023 review

We held our first in-person conference for 4 years on 2 September 2023 at the Library of Birmingham. It was good to be back together after the pandemic – well, if you were able to get there! Many were: despite … Continue reading

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Posted in Aniridia Network news, Fundraising, Medical staff talking, National Institute for Health WAGR study, Other agencies, Parents' accounts, Patients' tales, Research | Tagged , , , , , | 9 Comments

Conference 2023: Amy’s experience as a first-time attendee

I have lived with aniridia since birth; and no matter how many ‘specialised’ doctors you see or how many other people with visual impairments you meet, you still feel isolated, different, and misunderstood. Now I don’t speak for everyone when … Continue reading

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Annual General Meeting 2023

The Aniridia Network AGM will be held online on 13 August 2022 Continue reading

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2022 Annual General Meeting

The Aniridia Network AGM will be held online on 13 August 2022 Continue reading

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Conference 2022

Our main event of the year took place online today. People from all arond the UK, Ireland and beyond joined via Zoom to hear and talk about various aspects of aniridia. There reactions were heartening: I’m very grateful for all … Continue reading

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Posted in Aniridia Network news, Medical staff talking, Patients' tales, Research | Tagged , , , , , , , | 2 Comments

5th European Aniridia Conference

We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading

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Posted in International, Medical staff talking, Research | Tagged , , , , | 2 Comments

2021 Annual General Meeting

Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading

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Join our trustee team in 2021/22

Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading

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2020 Annual General Meeting

Held online on 21 June 2020 Continue reading

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