Tag Archives: meeting

Privilege, Protest, Power

Posted on Dec 13, 2025 by Aniridia Network

Talk by Elliott, person with aniridia at Conference 2025 “Identifying privilege, embracing protest and challenging power have all been integral to a journey these 25 years that I could not have imagined. “Fighting for a seat at the table for … Continue reading →

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Posted in Patients' tales | Tagged , , , , | 1 Comment

Exploring PAX6 related gene regulatory networks & its role in the developing brain

Posted on Dec 6, 2025 by Aniridia Network

Talk by Samuel Heczko & Dr. Wai Kit (Calvin) Chan, University of Edinburgh at Conference 2025 We all come from a single cell. But how does this cell know when and how to divide into a brain? And how does … Continue reading →

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Posted in Research | Tagged , , , , , | 1 Comment

Conference 2025

Posted on Nov 3, 2025 by Aniridia Network

“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading →

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Annual General Meeting 2025

Posted on Nov 1, 2025 by Aniridia Network

The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, was held online on 1/11/2025. Read minutes and watch a video. Continue reading →

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Annual General Meeting 2024

Posted on Jul 28, 2024 by Aniridia Network

The Aniridia Network AGM will be held online on 13 August 2022 Continue reading →

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Conference 2024

Posted on Jul 27, 2024 by Aniridia Network

We held this great event online and it was completely FREE to attend. We had a great line up of speakers, to talk about aniridia related themes. From personal experiences to cutting edge research, education and leadership – something for … Continue reading →

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Posted in Aniridia Network news, Education professionals sharing, Medical staff talking, Patients' tales, Research | Tagged , , , , , | 1 Comment

Conference 2023 review

Posted on Oct 1, 2023 by Aniridia Network

We held our first in-person conference for 4 years on 2 September 2023 at the Library of Birmingham. It was good to be back together after the pandemic – well, if you were able to get there! Many were: despite … Continue reading →

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Posted in Aniridia Network news, Fundraising, Medical staff talking, National Institute for Health WAGR study, Other agencies, Parents' accounts, Patients' tales, Research | Tagged , , , , , | 9 Comments

Conference 2023: Amy’s experience as a first-time attendee

Posted on Sep 2, 2023 by amy5woodward15

I have lived with aniridia since birth; and no matter how many ‘specialised’ doctors you see or how many other people with visual impairments you meet, you still feel isolated, different, and misunderstood. Now I don’t speak for everyone when … Continue reading →

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Annual General Meeting 2023

Posted on Sep 2, 2023 by Aniridia Network

The Aniridia Network AGM will be held online on 13 August 2022 Continue reading →

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2022 Annual General Meeting

Posted on Aug 13, 2022 by Aniridia Network

The Aniridia Network AGM will be held online on 13 August 2022 Continue reading →

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Posted in Aniridia Network news | Tagged , , , , | 2 Comments