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Tag Archives: Conference
Patrons looking backwards and forwards, and Lifetime Achievement Award for Veronica
We honoured the huge impact Veronica van Heyningen has had on our understanding of aniridia at our recent annual meeting. After a distingushed career growing understanding of the diverse functions of the PAX6 gene that often causes aniridia, Veronica has … Continue reading
Posted in Aniridia Network news
Tagged awards, Conference, Conference 2023, Patron, Veronica
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‘Knowing that you’re not on your own’: Research into internet use by people with aniridia
A researcher has found that for people with aniridia, being online, in relation to their condition is: During the past year, a Cardiff University masters student studied the experiences and attitudes of adults with aniridia towards internet and social media … Continue reading
Posted in Patients' tales, Research
Tagged Cardiff University, Conference, Conference 2023, social media
1 Comment
Research into improving transport for visually impaired people & life with aniridia
At our conference in Birmingham in September 2023, Emily Nash gave the following presentation discussing her life with aniridia, and her upcoming research study into how the accessibility of transport can be improved for people with sight loss. The study … Continue reading
Conference 2023 review
We held our first in-person conference for 4 years on 2 September 2023 at the Library of Birmingham. It was good to be back together after the pandemic – well, if you were able to get there! Many were: despite … Continue reading
Conference 2023: Amy’s experience as a first-time attendee
I have lived with aniridia since birth; and no matter how many ‘specialised’ doctors you see or how many other people with visual impairments you meet, you still feel isolated, different, and misunderstood. Now I don’t speak for everyone when … Continue reading
Annual General Meeting 2023
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
1 Comment
2022 Annual General Meeting
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
2 Comments
Conference 2022
Our main event of the year took place online today. People from all arond the UK, Ireland and beyond joined via Zoom to hear and talk about various aspects of aniridia. There reactions were heartening: I’m very grateful for all … Continue reading
5th European Aniridia Conference
We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading
Posted in International, Medical staff talking, Research
Tagged Aniridia Europe, Conference, European Aniridia Conference, event, meeting
2 Comments
2021 Annual General Meeting
Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
5 Comments
Aniridia Network 