Tag Archives: conference

2016 Annual General Meeting

The Annual General Meeting of Aniridia Network UK was held at: Holy Trinity Church , Maldon Road, Wallington, SM6 8BL at 2:30pm 14 May  2016 Read the minutes of the ANUK 2016 AGM (pdf) Agenda ANUK AGM minutes 2015 to be agreed Matters … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , , | 1 Comment

Tandems and Cricket – Meeting 2016

The main Aniridia Network UK event of 2016 took place in Wallington, Surrey. In a change from our usual format, we spent the morning in a park. dry and clear, ideal for trying out tandem riding and visually impaired cricket. Lots of … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , , , | Leave a comment

Serena and Violet with anirida and thier mums make friends

I met Dawn and Serena at an event held at Eureka Museum in Halifax aimed at visually impaired children. I recognised her from an Aniridia Network UK conference we had both attended in previous years, So I approached her to … Continue reading

Rate this:

Posted in Parents' accounts | Tagged , , | Leave a comment

Review of Newcastle Conference 2015

By Sarah, part of the Conference committee  Preparing and planning Organising for a conference is a bit like making a large purchase. You do your research, ask people who can help and enlist the help of a friend or two, Once you … Continue reading

Rate this:

Posted in ANUK news | Tagged , | Leave a comment

Help with conference costs

The cost of travelling to and attending our events is a big issue for some people. A family in Wales who receive support from their local integrated team for disabled children (social services) found a solution. They asked their social worker … Continue reading

Rate this:

Posted in ANUK news, Parents' accounts | Tagged | Leave a comment

Attending your first conference – it will be more positive than you think

By Heather B I attended an ANUK Conference for the first time in 2014. My daughter was diagnosed with aniridia at 5 weeks old, she is now 3 years old so I had managed to avoid the conference for 2 years. I knew … Continue reading

Rate this:

Posted in Patients' tales | Tagged , , , | Leave a comment

Notice of 2015 Annual General Meeting

Update: Minutes of ANUK AGM 2015 Notice is hereby given that the Annual General Meeting of Aniridia Network UK will be held at: Thistle Hotel, Neville Street, Newcastle upon Tyne NE1 5DF on 26 September 2015 to transact the following business. Agenda … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , , | 6 Comments

Questions & answers on aniridia

Session at Aniridia Network UK Conference 2014 By: Panel of experts and individuals affected by aniridia A chance to ask that question that you always remember on the way home from your appointment or that there never seems to be … Continue reading

Rate this:

Posted in Medical staff talking, Parents' accounts, Patients' tales, Welfare experts advising | Tagged , | Leave a comment

Protected: Living with aniridia – A generational perspective presentation

There is no excerpt because this is a protected post.

Rate this:

Posted in Patients' tales | Tagged ,

Emerging molecular therapies for aniridia presentation

Session at Aniridia Network UK Conference 2014 By: Professor Colin E. Willoughby The first part of this talk introduced the genetics of aniridia and in particular, the underlying molecular mechanisms, as this will form the basis to understand the developments in … Continue reading

Rate this:

Video | Posted on by | Tagged , , | Leave a comment