Tag Archives: Conference

Management of glaucoma associated with aniridia

Talk by Mr John Brookes, Moorfields Eye Hospital, at Conference 2025 A presentation about aniridia issues, particularly regarding how glaucoma is treated in children and adults with aniridia, from medical to laser and surgery. Mr Brookes trained in London and … Continue reading

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Can access to station information improve train travel for people with sight loss?

Talk by Emily Nash, Coventry University, at Conference 2025 Emily Nash is currently completing a PhD in improving access to train travel for people with sight loss. Her research is looking to identify and understand what barriers currently exist, and … Continue reading

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Privilege, Protest, Power

Talk by Elliott, person with aniridia at Conference 2025 “Identifying privilege, embracing protest and challenging power have all been integral to a journey these 25 years that I could not have imagined. “Fighting for a seat at the table for … Continue reading

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Exploring PAX6 related gene regulatory networks & its role in the developing brain

Talk by Samuel Heczko & Dr. Wai Kit (Calvin) Chan, University of Edinburgh at Conference 2025 We all come from a single cell. But how does this cell know when and how to divide into a brain? And how does … Continue reading

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How PAX6 gene deficiency affects your body

Talk by Professor Moosajee, Moorfields Eye Hospital at Conference 2025 It is now accepted that reduced PAX6, caused by genetic changes involving the gene, does not just affect the eye (causing aniridia) but has an impact on many other organs … Continue reading

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Conference 2025

“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading

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Annual General Meeting 2025

The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, was held online on 1/11/2025. Read minutes and watch a video. Continue reading

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Taking part in the European Aniridia Leadership Academy – Good things come to those who hustle

Haya Hassan is a 25-year-old woman from Wiltshire with sporadic aniridia. She graduated from university 2 years ago and has since been working in different charities, including a major UK sight loss charity. Some of her interests include reading, travelling … Continue reading

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3D corneal organoids for disease modelling and limbal stem cell deficiency cell therapy research

Dulce Lima Cunha is a postdoctoral researcher from UCL Institute of Ophthalmology, currently working at Radboud University in the Netherlands. Currently, her main research interests are uncovering rare disease mechanisms using induced pluripotent stem cell (iPSC)-derived 2D and 3D models … Continue reading

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Retinal detachments in Aniridia research at Moorfields

Vivienne Kit is an Ophthalmology Researcher at UCL Institute of Ophthalmology. In addition to her clinical duties, she is pursuing a postgraduate research degree in aniridia under the supervision of Professor Mariya Moosajee. In 2021, Vivienne and her team published … Continue reading

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