Conference 2018

Conference 2018 was on Saturday 14 April 2018 in London.

Our conferences and events are a chance to hear from, and ask questions in person to, people interested in and affected by aniridia.


Review  Twitter posts with the hashtag #ANUKconf and blog posts about Conference 2018.

Photo album of the day

Paperwork for Conference 2018 with wristband



View the presentation slides (pdf).

10:00  Welcome – James Buller

James Presentating 2018a

10:05  Keynote: Research into possible drug treatments – Dr Mariya Moosajee

10:40 2018 Annual General Meeting of Aniridia Network. What is the AGM?

11:10  PAX6 research at Liverpool University – Thanos Papadimitropoulos

12:00  Lunch & exhibition

Delegates talking 2018 2

13:00  Explanation of Access to Work – Geoff Taylor Meade

13:30  Visual impairment, depression & mental health services – Dr Ian Petch

14:30  Introduction to Nystagmus Network – Sue Ricketts

15:00  Refreshments & exhibition

Delegate talking and eating lunch around exhibition stalls while man with guide dog passes by

15:45  Raffle draw

Raffle draw and prizes 2018

15:45  Living with Aniridia – Fern Lulhum

16:15  Sleep and eye disease – Dr Iona Alexander

16:45  Psychological impact of aniridia – Effie Papa

18:00  Optional goalball tutorial and social evening

Goalball game

Other highlights

  • Stands by visiting organisations: Guide Dogs, Nystagmus Network, South East London Vision and Mainline Instruments Ltd
  • Fundraising and volunteering stall
  • Creche
  • Opportunity to speak to people and families affected by aniridia


The contents of the delegate pack including the conference and AGM agendas (see below) plus the following inserts, are available here:


  • Conference
    • Adult (ages 17+): £21
    • Child (ages 0-16): £8.50
  • Evening event
    • Ages 6 and older: £18 each
    • Ages 5 and younger: free as cannot play goalball