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Category Archives: Patients’ tales
Lois’s poem
Lois was inspired to write this poem during the Aniridia Network UK Conference 2012. What we see, is just the trunk of the tree. Competent and confident, in our own little way. No different from the king of Norway. Whether … Continue reading
Protected: Attendee’s review of Aniridia Network UK Conference 2012
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Posted in Aniridia Network news, Patients' tales
Tagged Conference
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Four days until guide dog number 4
It’s four days until I travel to Edinburgh to train with guide dog Annie. I can’t believe she will be dog number 4 for me in 9 years. People always ask ‘What happened?’. It’s always easy to say Berry had … Continue reading
Invitation to the Oslo Aniridia Conference
Aniridi Norge (the Norwegian aniridia association) has organised the first European scientific conference about aniridia as well as an international gathering for the aniridia community. You are invited between 8 and 10 June 2012. James and Katie from Aniridia Network … Continue reading
Posted in Medical staff talking, Parents' accounts, Patients' tales, Research
Tagged Aniridi Norge, Conference, meeting, Oslo
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Going to a work place party
Last Friday I attended an event organised and funded by the trustees of the charity I work for. The event was a 2 course dinner followed by a prize raffle and disco. The dress code was ‘dress to impress’. Before … Continue reading
London meet up: A personal review
By Keith The London meet up was surreal. Of the 14 people who turned up, so many of them were so like me. In one evening, I learnt so much about a condition I’ve had since birth. For the first … Continue reading
Protected: Being an exam subject
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Protected: Jenny’s career – Part 2: Looking for work
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Protected: 5 girls and 4 guide dogs go to Bognor Regis
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At school with aniridia
My name is Abbie-Rose and I am 14 years old which means I’m in year 9 at school. I live in Norwich and I have aniridia, nystagmus and a cataracts. I also have an auditory processing disorder (APD). My brother, … Continue reading
Posted in Patients' tales
Tagged auditory processing disorder APD, LVAs, school, teaching assistant, white cane
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