Category Archives: Patients’ tales

Patients’ tales of success or struggle with doctors, school, work or social lives

London meet up: A personal review

By Keith The London meet up was surreal. Of the 14 people who turned up, so many of them were so like me. In one evening, I learnt so much about a condition I’ve had since birth. For the first … Continue reading →

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Protected: Being an exam subject

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Protected: Jenny’s career – Part 2: Looking for work

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Protected: 5 girls and 4 guide dogs go to Bognor Regis

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At school with aniridia

My name is Abbie-Rose and I am 14 years old which means I’m in year 9 at school. I live in Norwich and I have aniridia, nystagmus and a cataracts. I also have an auditory processing disorder (APD). My brother, … Continue reading →

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Protected: On your bike

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Sinead’s introduction

Hi, my name is Sinead. I am 29 years old. I have aniridia, nystagmus, coloboma, and glaucoma. I am registered blind as I have only have 5% vision. I live in the Republic of Ireland and am the country’s first … Continue reading →

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Protected: See what we can do

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RNIB Phone Watch

I’ve always had a bit of a quandry with my mobile phone. I don’t really need to use a screen reader with but struggle just enough to discourage me from using the internet on it. So I’ve never gotten a … Continue reading →

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Katie’s introduction

I was born in 1983 with sporadic aniridia and also have nystagmus, cataracts, glaucoma and aniridic keratopathy. I am registered partially sighted. I live in Sheffield with my partner. My hobbies include ice skating, walking and reading.listening to audio books. I am/was … Continue reading →

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