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Category Archives: Aniridia Network news
Annual General Meeting 2023
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Annual Report 2022-2023
Read details of what our officials, members and supporters did as well our finances between 1 April 2022 and 31 March 2023 in the Aniridia Network Annual Report for 2022/23. See also the Aniridia Network financial statements 2023 and their independent … Continue reading
Meet up for Aniridia Day 2023
Seven peoople with aniridia came to the pub in St Pancras Station celebrate Aniridia Day together this year. The youngest was 19, the oldest 67. After buying them welcome drinks there’s was lots of great chat including about about studying … Continue reading
A decade as Patron of Aniridia Network
In 2013 Veronica van Heyningen became Aniridia Network Patron. Having helped to appoint a new patron she reflects on the progress we’ve made together. Ten years ago when I took up the role of Patron in this wonderful aniridia support … Continue reading
Meet ups for Rare Disease Day 2023
Seventeen people were at our get togethers last weekend to celebrate Rare Disease Day, in London and Cambridge. They came to meet fellow aniridia patients and relatives to chat about all aspect of aniridia. Andy hosted the Cambridge event in the … Continue reading
Meet up & stall after/at Sight Village London
We held a wonderful meet up of people affected by aniridia in Kensington. It was after the Sight Village exhibition where we had a stall. It was a brilliant day and evening where we talked about all aspects of aniridia … Continue reading
2022 Volunteer Awards
We rely completely on the brilliant people who use their spare time and skills to run our charity. We are so thankful for the efforts of all our volunteers and hence what they get done for our beneficiaries. To aknowledge … Continue reading
2022 Annual General Meeting
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
2 Comments
Conference 2022
Our main event of the year took place online today. People from all arond the UK, Ireland and beyond joined via Zoom to hear and talk about various aspects of aniridia. There reactions were heartening: I’m very grateful for all … Continue reading
Annual Report 2021-2022
Read details of what our officials, members and supporters did as well our finances between 1 April 2021 and 31 March 2022 in the Aniridia Network Annual Report for 2021/22. See also the Aniridia Network financial statements and their independent examination … Continue reading
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