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Category Archives: Aniridia Network news
2022 Annual General Meeting
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Conference 2022
Our main event of the year took place online today. People from all arond the UK, Ireland and beyond joined via Zoom to hear and talk about various aspects of aniridia. There reactions were heartening: I’m very grateful for all … Continue reading
Annual Report 2021-2022
Read details of what our officials, members and supporters did as well our finances between 1 April 2021 and 31 March 2022 in the Aniridia Network Annual Report for 2021/22. See also the Aniridia Network financial statements and their independent examination … Continue reading
2021 Volunteer Awards
We would be nothing without the amazing people who give up their time and use their skills to run our charity. We are extremely grateful for all our volunteer’s efforts and what they achieve from them for our beneficiaries. To … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, awards, volunteering
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Annual Report 2020-2021
Read what our officials, members and supporters did and about our finances last year in the Aniridia Network Annual Report for 2020/21. Continue reading
Review of our achievements since last Aniridia Day
To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading
Members + Supporters clarification and data check
As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading
2021 Annual General Meeting
Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Join our trustee team in 2021/22
Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, meeting, trustees, volunteering
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Gene.Vision website about aniridia launched
Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading
