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Category Archives: Aniridia Network news
Online meet up for Rare Disease Day
To mark Rare Disease Day, we hosted a special online meet-up for the UK aniridia community! Most people there were adults with aniridia, both sporadic and familial. There was also a parent with an aniridic child, and a scientist. They … Continue reading
Meet up in Kensington after Sight Village 2024
Twelve people joined us for dinner and chat about aniridia on 5 November. This included an American woman who has recently move to London for work and another long-lost member as well as several regulars. It was immediately after the … Continue reading
Annual General Meeting 2024
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2024, meeting, trustees
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Conference 2024
We held this great event online and it was completely FREE to attend. We had a great line up of speakers, to talk about aniridia related themes. From personal experiences to cutting edge research, education and leadership – something for … Continue reading
Annual Report 2023-2024
Read details of what our officials, members and supporters did as well our finances between 1 April 2023 and 31 March 2024 in the Aniridia Network Annual Report for 2023/24. Key points Thanks to the the amazing input by everyone who … Continue reading
Thanks to our retiring Medical Adviser Melanie Hingorani
Our long-time go-to for all medical queries, Melanie Hingorani, has retired from working as a consultant at Moorfields Eye Hospital and with us too. Her career had a focus on engagement and quality in eye healthcare, including answering our members’ … Continue reading
Meet up to mark Rare Disease Day
18 members came to one of 4 meet ups around England to celebrate international Rare Disease Day 2024. They got to meet fellow aniridia patients and relatives to chat about all aspect of aniridia. As always it was a wonderful … Continue reading
Patrons looking backwards and forwards, and Lifetime Achievement Award for Veronica
We honoured the huge impact Veronica van Heyningen has had on our understanding of aniridia at our recent annual meeting. After a distingushed career growing understanding of the diverse functions of the PAX6 gene that often causes aniridia, Veronica has … Continue reading
Posted in Aniridia Network news
Tagged awards, Conference, Conference 2023, Patron, Veronica
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18-30? Apply for the 3-day aniridia academy in Stockholm
We have a great Christmas present and new year offering for you.But you need to act quickly to have a chance to take it! We want to help 18-30 year olds with aniridia kickstart your careers, advance your studies or … Continue reading
Conference 2023 review
We held our first in-person conference for 4 years on 2 September 2023 at the Library of Birmingham. It was good to be back together after the pandemic – well, if you were able to get there! Many were: despite … Continue reading
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