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Category Archives: Aniridia Network news
Patrons looking backwards and forwards, and Lifetime Achievement Award for Veronica
We honoured the huge impact Veronica van Heyningen has had on our understanding of aniridia at our recent annual meeting. After a distingushed career growing understanding of the diverse functions of the PAX6 gene that often causes aniridia, Veronica has … Continue reading
Posted in Aniridia Network news
Tagged awards, Conference, Conference 2023, Patron, Veronica
1 Comment
18-30? Apply for the 3-day aniridia academy in Stockholm
We have a great Christmas present and new year offering for you.But you need to act quickly to have a chance to take it! We want to help 18-30 year olds with aniridia kickstart your careers, advance your studies or … Continue reading
Conference 2023 review
We held our first in-person conference for 4 years on 2 September 2023 at the Library of Birmingham. It was good to be back together after the pandemic – well, if you were able to get there! Many were: despite … Continue reading
Annual General Meeting 2023
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
1 Comment
Annual Report 2022-2023
Read details of what our officials, members and supporters did as well our finances between 1 April 2022 and 31 March 2023 in the Aniridia Network Annual Report for 2022/23. See also the Aniridia Network financial statements 2023 and their independent … Continue reading
Meet up for Aniridia Day 2023
Seven peoople with aniridia came to the pub in St Pancras Station celebrate Aniridia Day together this year. The youngest was 19, the oldest 67. After buying them welcome drinks there’s was lots of great chat including about about studying … Continue reading
A decade as Patron of Aniridia Network
In 2013 Veronica van Heyningen became Aniridia Network Patron. Having helped to appoint a new patron she reflects on the progress we’ve made together. Ten years ago when I took up the role of Patron in this wonderful aniridia support … Continue reading
Meet ups for Rare Disease Day 2023
Seventeen people were at our get togethers last weekend to celebrate Rare Disease Day, in London and Cambridge. They came to meet fellow aniridia patients and relatives to chat about all aspect of aniridia. Andy hosted the Cambridge event in the … Continue reading
Meet up & stall after/at Sight Village London
We held a wonderful meet up of people affected by aniridia in Kensington. It was after the Sight Village exhibition where we had a stall. It was a brilliant day and evening where we talked about all aspects of aniridia … Continue reading
2022 Volunteer Awards
We rely completely on the brilliant people who use their spare time and skills to run our charity. We are so thankful for the efforts of all our volunteers and hence what they get done for our beneficiaries. To aknowledge … Continue reading
