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Category Archives: Aniridia Network news
Behold our new logo
A new logo for Aniridia Network UK has been unveiled. It features an eye and a variety of people coming together to help each other. The new Aniridia Network UK logo “It better illustrates the purpose and ethos of the … Continue reading
Protected: Newcomer’s review of Conference 2011
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Conference 2011 review
The Aniridia Network UK conference 2011 was on 14 May. It was a big success. Newcomer Jane said “The highlight of the day for me was definitely being able to meet other parents of children with aniridia, sharing experiences with those … Continue reading
Pig & Pimms Garden Party in aid of Shine The Light On Aniridia
By Elly Chappele Shine The Light On Aniridia has been been raising funds to enable research for a cure for Aniridia to begin this year. we hope, at Moorfields Eye Hospital in London under Dr Julie Daniels and her team. … Continue reading
We are now an official charity
Aniridia Network UK is extremely pleased to announce that we have been recognised as a charity. Our reference number is XT26830. It is a big step forward as it gives us an additional level of respectability and other benefits. HM … Continue reading
Protected: 2011 Annual General Meeting and trustee’s plans
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Aniridia in Europe – Meeting in Paris
Recently Aniridia Network UK was invited to attend a meeting in Paris of all the aniridia support groups in Europe. Eurodis (Rare Diseases Europe) had kindly agreed to help fund the meeting, providing us with 300 euros to attend so … Continue reading
Edinburgh Aniridia Conference
On Wednesday evening Sandie (guide dog) and I met Katie, Jenny and Jaynie (guide dog) on the train up to Edinburgh. As always we talked non stop catching up on the news despite chatting on MSN very regularly. Sandie and … Continue reading
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