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Category Archives: Aniridia Network news
Grow your skills, meet new people and help the aniridia community
Are you or someone you know: If ‘Yes’: Come to Bulgaria in April 2026 for the ‘European Aniridia Leadership and Collaboration Academy‘. We’re seeking people with and without aniridia to join a 3-day event aiming to raise your: Practical workshops … Continue reading
Conference 2025
“I found it very informative and took things from each of the talks that I feel like could use going forward to inform my own family and myself when dealing with our healthcare” Attendee Our main event of the year … Continue reading
Posted in Aniridia Network news, Medical staff talking, Patients' tales, Research
Tagged Conference, Conference 2025, event, meeting
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Annual General Meeting 2025
The Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation, was held online on 1/11/2025. Read minutes and watch a video. Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2025, meeting, trustees
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2025 Volunteer Awards
We would be nothing with the lovely people who use their skills in their spare time to do our charitabke deeds. We are very appreciative of the efforts of all our volunteers and hence what they get done for our … Continue reading
Annual Report 2024-2025
Read details of what our officials, members and supporters did as well our finances between 1 April 2024 and 31 March 2025 in the Aniridia Network Annual Report for 2024/25. Key points Thanks to the the amazing input by everyone who … Continue reading
New Medical Advisors
We have appointed two distinguished medical experts to continue our support for the aniridia community. Mr John Brookes and Professor Mariya Moosajee are now our medical advisors, ready to respond to enquiries from our members and their families. Both are … Continue reading
Posted in Aniridia Network news
Tagged John Brookes, Mariya Moosajee, medical panel, volunteering
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Apply for our 2nd grant for UK aniridia research
Apply for a £15k grant to collect preliminary/pilot data for later research into congenital aniridia. Continue reading
Meet up for Rare Disease Day
We held two great friendly gatherings to celebrate Rare Disease Day 2025 with patients and their relatives. The first was online on Friday evening. 11 peole joined in. For up to 2 hours they discussed their personal stories about living … Continue reading
Online meet up for Rare Disease Day
To mark Rare Disease Day, we hosted a special online meet-up for the UK aniridia community! Most people there were adults with aniridia, both sporadic and familial. There was also a parent with an aniridic child, and a scientist. They … Continue reading
Meet up in Kensington after Sight Village 2024
Twelve people joined us for dinner and chat about aniridia on 5 November. This included an American woman who has recently move to London for work and another long-lost member as well as several regulars. It was immediately after the … Continue reading
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