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Author Archives: Aniridia Network
2nd hand clothes sold in aid of aniridia
A boutique selling second hand clothes donated £456 of its profits to Aniridia Network. Feel Good Fashion takes in preloved clothes and sells them on, aiming to reduce waste. The proceeds are split: 40% to the previous owner, 40% to … Continue reading
Golf competion raffles raise £1000
The Tidworth Garrison Golf Club runs an annual open competition for seniors, and alongside it a fundraising raffle. For the past 2 years Vice Captain John has arranged for it to be in aid of aniridia. His 4 year granddaughter … Continue reading
Katie: Judo Paralympian with aniridia
To show what’s possible for a person with aniridia, we checked in with one competing in judo at the Tokyo Paralympics. Meet Katie, part of Team USA. I’m Katie Davis from Sacramento California. I was born with aniridia and nystagmus, … Continue reading
Amanda: Goalball Paralympian with aniridia
To demonstrate the amazing things a person with aniridia can achieve, we interviewed one competing at their 3rd Paralympics in Tokyo. Amanda is part of Team USA, hoping to better her USA Women’s Goalball team’s bronze medal won in 2016. … Continue reading
Tricia’s fundraising hike up Snowdon
Tricia was motivated to raise mone for Aniridia Network by her 8 year old granddaughter. Olivia is a very bright fun loving child with sporadic aniridia. Her plan was to get sponsored to walk up and down Snowdon; the highest … Continue reading
5th European Aniridia Conference
We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading
Posted in International, Medical staff talking, Research
Tagged Aniridia Europe, Conference, European Aniridia Conference, event, meeting
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Annual Report 2020-2021
Read what our officials, members and supporters did and about our finances last year in the Aniridia Network Annual Report for 2020/21. Continue reading
Sunglasses Day raises shade over £30
A class of children has collected £30.10 for Aniridia Network by holding a sunglasses day. Zinovia, who has aniridia and her 8 year old classmates at Milton CofE Primary School brought in a donation and funky glasses this week, as … Continue reading
Bernie and Abbie interview each other
Mother and daughter with aniridia decided to ask each other questions on camera about their lives to celebreate Aniridia Day 2021 Abbie has made other videos about aniridia and other aspects of her life, check them out. To take part … Continue reading
Review of our achievements since last Aniridia Day
To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading
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