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Author Archives: Aniridia Network
Review of Aniridia Network UK Conference 2013
By Sarah Conference 2013 was the first Aniridia Network UK (ANUK) conference that I had attended. I had quite an intense experience as I was there in both personal and official capacities – having aniridia and being part of the conference … Continue reading
Leicester researchers seek under 7s with aniridia
Researchers in Leicester are seeking children with aniridia to take part in a study of the retina and optic nerve. Would your child like to participate? They are monitoring the normal and abnormal development of the retina and optic nerve in … Continue reading
Phil’s triathlon raises over £500 for ANUK
A massive thank you and well done to Phil who has raised £560 for Aniridia Network UK by running a triathalon. The race at Ripon racecourse in Yorkshire was his first ever attempt at the swimming, cycling, running challenge. Here’s … Continue reading
Posted in Aniridia Network news, Fundraising
Tagged collection, fundraising, triathlon
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Juggling with aniridia
Harry, who has aniridia, has learned to juggle. We recorded the two videos below, one year apart, of him showing off his skills. He’s pretty good. Harry’s acuity is 6/36 which is near the top of the range reported by … Continue reading
Knighthood for member of our medical panel
Professor Peng Tee Khaw, a who sits on the Aniridia Network UK medical panel, was awarded a knighthood in the Queen’s 2013 Birthday Honours. The consultant ophthalmic surgeon received the honour for services to ophthalmology. At the Aniridia Network UK … Continue reading
Patients needed for research into if nystagmus slows down sight
A growing body of evidence suggests that people with nystagmus need more time to see the world around them than those with ordinary vision. However, existing sight tests for distance vision take no account of response times and are a … Continue reading
Conference 2013 – a parent’s review: ‘Good Vibrations’
By Susan, the parent of a 4-year-old daughter with aniridia and WAGR/11p Deletion Syndrome. I am so glad I went to this year’s Aniridia Network UK (ANUK) annual conference. I had almost decided to give it a miss but it turned … Continue reading
Recruitment for the Optimum VI project: Early development and support of babies and young children with a visual impairment
This important national study is being led by Great Ormond Street Hospital Developmental Vision team (Dr. Naomi Dale and Dr. Alison Salt). This is the first national study to investigate early development and support in babies and young children with … Continue reading
Posted in Research
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Protected: Woman with aniridia is first to get new corneal stem cell transplant in UK
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Posted in Medical staff talking, Patients' tales, Research
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Protected: Life with aniridia by Ben and Lois
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