Researchers in Leicester are seeking children with aniridia to take part in a study of the retina and optic nerve. Would your child like to participate?

They are monitoring the normal and abnormal development of the retina and optic nerve in infants and children and comparing this to adults. An imaging technique called ultra-high resolution optical coherence tomography is being used to do this.

Helena, Sarim and Viral-from Leicester University at the Aniridia Network UK Conference-2013

Dr Helena Lee, Clinical Research Fellow in Ophthalmology, said “We hope that the knowledge we gain from this research will lead to improved early diagnosis, management and treatment of conditions affecting retinal development.”

“I have looked at lots of other children but so far none with aniridia, which ironically is probably one the conditions in which the equipment may be of most benefit in monitoring its progression . Basically the more infants and children that come in with aniridia, the quicker I can optimize the machine for use with them. Potentially we will be able to monitor glaucoma, develop visual prognostic indicators and perhaps develop a picture of what is happening in their eyes as they are growing.”

Professor Irene Gottlob

The principle investigator is Professor Irene Gotlob who recently joined the Aniridia Network UK Medical Panel. So were are pleased to be returning the favours by supporting her.

Taking part will involve a number of examinations at Leicester for which travelling expenses may be claimed  Find out more about what the research involves and how to sign up. If you have any questions contact Helena on hl146@leicester.ac.uk.