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Author Archives: Aniridia Network
Juggling with aniridia
Harry, who has aniridia, has learned to juggle. We recorded the two videos below, one year apart, of him showing off his skills. He’s pretty good. Harry’s acuity is 6/36 which is near the top of the range reported by … Continue reading
Knighthood for member of our medical panel
Professor Peng Tee Khaw, a who sits on the Aniridia Network UK medical panel, was awarded a knighthood in the Queen’s 2013 Birthday Honours. The consultant ophthalmic surgeon received the honour for services to ophthalmology. At the Aniridia Network UK … Continue reading
Patients needed for research into if nystagmus slows down sight
A growing body of evidence suggests that people with nystagmus need more time to see the world around them than those with ordinary vision. However, existing sight tests for distance vision take no account of response times and are a … Continue reading
Conference 2013 – a parent’s review: ‘Good Vibrations’
By Susan, the parent of a 4-year-old daughter with aniridia and WAGR/11p Deletion Syndrome. I am so glad I went to this year’s Aniridia Network UK (ANUK) annual conference. I had almost decided to give it a miss but it turned … Continue reading
Recruitment for the Optimum VI project: Early development and support of babies and young children with a visual impairment
This important national study is being led by Great Ormond Street Hospital Developmental Vision team (Dr. Naomi Dale and Dr. Alison Salt). This is the first national study to investigate early development and support in babies and young children with … Continue reading
Posted in Research
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Protected: Woman with aniridia is first to get new corneal stem cell transplant in UK
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Posted in Medical staff talking, Patients' tales, Research
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Protected: Life with aniridia by Ben and Lois
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Do anyone’s eyes with aniridia have difficulty looking side ways?
Dr Joan Han, a physician at the National Institutes of Health in Bethesda, Maryland, USA, who is researching aniridia and WAGR/11p deletion syndrome has a question for you: Do the eyes of anyone with aniridia not move fully to the side when … Continue reading
Dear David Cameron: What life is really like with aniridia and on benefits
Today government plans for the biggest shake-up of the welfare system for decades come in to force. Hundreds of thousands of households across the UK will be affected by the changes to benefits. An article in the Mirror last autumn featured … Continue reading
Answer the Impact of nystagmus questionnaire
83% of people with aniridia also have nystagmus (‘wobbly eyes’). It is a factor in how much vision these people have. Here is an opportunity to contribute to research in to nystagmus. Nystagmus affects quality of life in all sorts … Continue reading
Posted in Research
Tagged nystagmus, nystagmus network, research, university of leicester
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