Author Archives: Aniridia Network

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About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.

Aniridia doesn’t stop Jessica doing all kinds of sports

ByJessica I am 21 living in London, have partial aniridia and have never let it stop me from any kind of sport. know some people get worried about sporting with an eye condition like this and am fully aware that … Continue reading

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Change to how you can help ANUK by shopping on Amazon

There is an easy ways to raise money for us simply by shopping on Amazon.co.uk. It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading

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Invitation to aniridia youth summer camp 2015 in Italy

Registration deadline 1 February 2015 Aged 15-25 and have aniridia? Parent or sibling of such a person? You are invited to a fabulous activity holiday in Italy with 80 others from around Europe. The camp will run 4-14 August 2015 and will … Continue reading

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Marina wins £250 in our Christmas raffle

The first Aniridia Network UK nationwide raffle took place in November. Congratulations to Marina in London who scooped the prize of £250 worth of Love 2 Shop vouchers.. Marina is mum to young Cormac who has sporadic aniridia. Liz, our Fundraising … Continue reading

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Buy tickets in our Christmas raffle

We decided that the generous donation of £250 in shopping vouchers earlier this year merited a special prize draw to raise funds for our future activities. In these difficult times we thought a pre-Christmas financial boost for the winner would be … Continue reading

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Lois leads England Women Blind Cricket Team

Lois who has aniridia is captain of the England Women’s Blind Cricket Team. They are currently on tour in Nepal. Before they left, she and others were interviewed by BBC Radio 4 In Touch The Nepalese cricket team inspired the Cricket … Continue reading

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Harry’s marathon raises £900 for ANUK

Harry is the brother of our Chair Katie and is a keen runner. He has always wanted to run a marathon and managed to get a place on the event in York. Aniridia Network UK was, of course, his charity … Continue reading

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A different way to see the sights of London

 By Sarah Are we gluttons for punishment or just determined to prove it wasn’t a fluke? Lorna and I have been off round London again in aid of research into aniridia. We did the Carrot NightWalk in London yesterday. This time our starting … Continue reading

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Sarah’s Carrot Night Walk 2014 for aniridia research

By Sarah Hargraves I’ve been in training again. As last year, to help improve funding for aniridia research, I’m doing the 15 mile Carrots Night Walk. It’s0 in London on 19 September in the dark!. I’m doing the walk in … Continue reading

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1 mile open water swim in aid of aniridia

Sunday 16th February 2014… 12.30pm I got the phone call I had been waiting for. My sister, my best friend had gone into labour and was due to give birth to my nephew. As a mother myself having given birth … Continue reading

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