People with aniridia are spread all over the world. But where is everybody based? How many people are there with aniridia in each country?

It’s impossible to have exact figures, but the Disease Maps website is a useful way to get an estimate of its global impact, if we all contribute to it.

The Aniridia Disease Map shows where people with the condition are based worldwide, for all those who have given their general location so far.

Currently there are just over 150 people on the map. The majority are in Europe, the USA and South America, but there are also people registered in Russia, Egypt, Libya, Japan and Australia.

We would really like this to grow, because the more of us that add ourselves to the map, the more comprehensive and accurate it will be. It could then be of great use to professionals such as researchers and doctors, as well as aniridia patients themselves.

So please do join the aniridia map and share it with your friends. It would also be helpful to fill out the aniridia survey while you’re there, which will help to build up information about the condition on the site.