Keynote session at Aniridia Network UK Conference 2014

There was no history of aniridia in the family, but when Harry arrived their journey with aniridia had begun.

This session is a personal account of learning to deal with Harry’s aniridia and its implications from a family perspective. Everyone’s journey is different and their challenges of moving the family twice in the UK and growing up through the education system with several changes of school are discussed.

By working to understand the condition, with support from a wide range of organisations, and by providing opportunities for Harry, they have grown as a family, had experiences that they might not otherwise have had and have learned a lot about themselves. They consider themselves to be fortunate, in that aniridia has given them as much as it has taken away.

Here’s a video of Harry showing off his juggling skills at a previous conference.