Raising kids is hard enough, so how do mothers with aniridia cope?


I was born severely sight impaired, so I’ve never really known any different. When I was a young woman in my twenties my condition was stable. I was pretty independent: I had a job, as a bank clerk, and a husband. I just got on with it – that’s what you do. And I’d grown up around people with vision impairments, so it all seemed fairly normal to me.

I always wanted children and knew that the chances were some of them would inherit the condition. But I’d never felt like I’d missed out on anything. I also had every confidence that I could bring up a child with my level of vision.

What I hadn’t bargained for was conceiving twins and a sudden deterioration of my sight during pregnancy.

This rest of this article can be read at it’s source: The Telegraph


In Newcastle Beth who has aniridia is guided around by her dog Annie and pulls baby Edwards behind her in a buggy. ITV Tyne Tees filmed her talking about getting about and being refused taxis.


If you are a mum with aniridia, or have a child who does, and would like support, check out our befriending scheme.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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