I was born severely sight impaired, so I’ve never really known any different. When I was a young woman in my twenties my condition was stable. I was pretty independent: I had a job, as a bank clerk, and a husband. I just got on with it – that’s what you do. And I’d grown up around people with vision impairments, so it all seemed fairly normal to me.
I always wanted children and knew that the chances were some of them would inherit the condition. But I’d never felt like I’d missed out on anything. I also had every confidence that I could bring up a child with my level of vision.
What I hadn’t bargained for was conceiving twins and a sudden deterioration of my sight during pregnancy.
In Newcastle Beth who has aniridia is guided around by her dog Annie and pulls baby Edwards behind her in a buggy. ITV Tyne Tees filmed her talking about getting about and being refused taxis.
If you are a mum with aniridia, or have a child who does, and would like support, check out our befriending scheme.