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Tag Archives: Sight Village
Meet up for Rare Disease Day
We held two great friendly gatherings to celebrate Rare Disease Day 2025 with patients and their relatives. The first was online on Friday evening. 11 peole joined in. For up to 2 hours they discussed their personal stories about living … Continue reading
Meet up in Kensington after Sight Village 2024
Twelve people joined us for dinner and chat about aniridia on 5 November. This included an American woman who has recently move to London for work and another long-lost member as well as several regulars. It was immediately after the … Continue reading
Meet up & stall after/at Sight Village London
We held a wonderful meet up of people affected by aniridia in Kensington. It was after the Sight Village exhibition where we had a stall. It was a brilliant day and evening where we talked about all aspects of aniridia … Continue reading
Aniridia Network 