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Category Archives: Parents’ accounts
Natasha and Violet: fundraising and media stars
Natasha, mum to Violet with aniridia responded to our calls for fundraising and media volunteers. She’s been holding raffles and selling goods via Facebook in her home town of Halifax, West Yorkshire. The current drive is for Easter eggs … Continue reading
Harry wins teen “Caring For Others” award
A boy with aniridia has won an award for his caring nature. Harry, 16, from the Exeter area won the “Caring For Others” category in the Teen Awards run by the Exeter Express & Echo newspaper. The awards “show that teenagers … Continue reading
Protected: On your bike
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Posted in Parents' accounts, Patients' tales
Tagged achievements, sport
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Thoughts on the Special Educational Needs & Disability Green paper
I (Laura) recently attended parent consultation meetings run by NBCS/RNIB on the Government’s reform proposals in the Special Educational Needs & Disability (SEND) Green paper. It leaves a lot to be desired!! I have to stress that this is not definitely … Continue reading
Protected: Newcomer’s review of Conference 2011
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Posted in Aniridia Network news, Parents' accounts
Tagged Conference
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Diagnosis difficulties – a father’s experience
Fuad and daughter Shakila If you follow Aniridia Network UK on Facebook you may have already read the story of Fuad and his daughter Shakila featured in these articles Article in The Voice Article in The Standard Article in The … Continue reading
Posted in Parents' accounts
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