Category Archives: International

Be a leader of Aniridia Europe

Posted on May 22, 2024 by Aniridia Network

Aniridia Europe is recruiting volunteers to be directors, to lead and carry out its activities for the next 2 years. It’s an important and exciting role where you can influence the support provided to aniridia researchers, doctors, associations and patients, across … Continue reading →

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Rare Disease Day 2024

Posted on Feb 24, 2024 by amy5woodward15

300 million people worldwide are living with a rare disease, including 3.5 million (1.6%) in the UK. There are over 7,000 rare diseases, one of these being aniridia. February 29 is Rare Disease Day, a time to raise awareness and … Continue reading →

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18-30? Apply for the 3-day aniridia academy in Stockholm

Posted on Dec 19, 2023 by Aniridia Network

We have a great Christmas present and new year offering for you.But you need to act quickly to have a chance to take it! We want to help 18-30 year olds with aniridia kickstart your careers, advance your studies or … Continue reading →

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Tickets for European Aniridia Conference 2024 selling out

Posted on Dec 17, 2023 by Aniridia Network

There has been a very demand for the places at the 7th European Aniridia Conference, in Stockholm, Sweden. That is fantastic and very promising, but unfortunately they are running out of tickets. Book now if you want to attend. Including … Continue reading →

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6th European Aniridia Conference

Posted on Jun 5, 2022 by Aniridia Network

By Claire My daughter Laura, who has aniridia, and I set off for the conference early on Friday 3rd June to join other families seeking more information about this rare condition that many health professionals are unaware of. How heartening to … Continue reading →

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5th European Aniridia Conference

Posted on Aug 1, 2021 by Aniridia Network

We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading →

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