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Category Archives: Fundraising
Peter and Lyn include Aniridia Network UK in their wills
By Peter and Lyn Having recently retired, our thoughts turned to updating our wills. We have always been extremely grateful for the support and advice we received from others when our son James was diagnosed with aniridia back in 1979. Back … Continue reading
Posted in Fundraising, Parents' accounts
Tagged fundraising, legacy, regular donation, will
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Natasha and Violet: fundraising and media stars
Natasha, mum to Violet with aniridia responded to our calls for fundraising and media volunteers. She’s been holding raffles and selling goods via Facebook in her home town of Halifax, West Yorkshire. The current drive is for Easter eggs … Continue reading
Prepare for Rare Disease Day: Wednesday 29 February 2012
Rare but strong together A rare medical condition affects less than 1 in 2000 people. Aniridia affects about 1 in 100,000 people. Even fewer have WAGR/11p deletion syndrome making it ultra-rare. But collectively people who have rare conditions are not … Continue reading
Posted in Campaigns, Fundraising, Other agencies
Tagged fundraising, rare disease, rare disease day
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Charity strategy update
Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading
Posted in Aniridia Network news, Fundraising
Tagged charity, fundraising, meeting, membership, strategy, trustees, volunteering
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Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Katie raises over £800 doing the Great North Run
You may remember that recently Katie Atkinson took part in the Great North Run to raise money for Aniridia Network UK. Katie completed the half marathon race in 3 hours and 40 minutes and raised over £750 for Aniridia Network … Continue reading
Pig & Pimms Garden Party in aid of Shine The Light On Aniridia
By Elly Chappele Shine The Light On Aniridia has been been raising funds to enable research for a cure for Aniridia to begin this year. we hope, at Moorfields Eye Hospital in London under Dr Julie Daniels and her team. … Continue reading
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