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Category Archives: Fundraising
School girl bakes buns in aid of friend’s aniridia
By Natasha My daughter has aniridia. A girl at her school, not much older than Violet held a bun sale to raise money for a charity of my daughter’s choice. The girl arranged it all by herself, made all the posters to … Continue reading
Mark’s 115km triathlon for ANUK
With your support Mark swam, cycled and ran 115 kilometres to raise £185 for Aniridia Network UK. He trained for the Cleveland Steelman triathlon earlier this month. It began with a 2,000m swim around a lake. Then straight out of the water … Continue reading
Thanks to Dassault for technical donation
A big thank you to Dassault Systems for donating audio visual equipment to Aniridia Network UK. Tony and colleagues, working in Warrington took part in a challenge to buy an item for up to £200 for a charity. He remembered our … Continue reading
Thousands raised for aniridia research and support
Hardy cyclists tackled a 100-mile bike ride to raise more than £10,000 for crucial eyesight-saving research, inspired by Ella a girl who has aniridia as part of WAGR syndrome and is also deaf. A 22-strong team, led by Ella’s dad … Continue reading
Researchers sell cakes to raise £115 in aid of ANUK
Researchers at University College London raised £115 for Aniridia Network UK by making and selling cakes. They had a cake stall in the common room of the UCL Institute of Ophthalmology which is attached to Moorfields Eye Hospital. Organiser Victoria is studying cornea … Continue reading
Take a (No) #IrisSelfie to raise awareness and funds for aniridia
We want to raise awareness of aniridia, help those who are visually impaired because of it, and support treatment research. So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / … Continue reading
Posted in Campaigns, Fundraising, Patients' tales
Tagged fundraising, IrisSelfie, rare disease, rare disease day
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Drug company donates £1,000 to ANUK
A global biopharmaceutical company has provided a donation to ANUK for which we are extremely grateful. PTC Therapeutics is the company that discovered and is developing ataluren for the treatment of disorders due to a genetic nonsense mutation. Approximately 20% of patients … Continue reading
Posted in ANUK news, Fundraising, Research
Tagged ataluren, donation, fundraising, ptc
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Change to how you can help ANUK by shopping on Amazon
There is an easy ways to raise money for us simply by shopping on Amazon.co.uk. It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading
Marina wins £250 in our Christmas raffle
The first Aniridia Network UK nationwide raffle took place in November. Congratulations to Marina in London who scooped the prize of £250 worth of Love 2 Shop vouchers.. Marina is mum to young Cormac who has sporadic aniridia. Liz, our Fundraising … Continue reading
Buy tickets in our Christmas raffle
We decided that the generous donation of £250 in shopping vouchers earlier this year merited a special prize draw to raise funds for our future activities. In these difficult times we thought a pre-Christmas financial boost for the winner would be … Continue reading
