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Category Archives: Aniridia Network news
New Treasurer and bank
We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading
Win up to £40 in the aniridia poetry competition
Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading
Annual Report 2016-2017
Details of what our officials did between April 2016 and March 2017 are in the ANUK Annual Report 2016-17. There is also the ANUK Financial Report 2016-17.
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, meeting
Comments Off on Annual Report 2016-2017
First aniridia meeting in Ireland review
The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading
Insights from UK Genetic Disorders Leadership Symposium 2017
Advice for creating a definitive source of information about a syndrome and the opportunity to be involved in Jeans For Genes Day were just some of the results of the latest event we attended. Aniridia Network (ANUK) Trustee James was among … Continue reading
First aniridia meeting in Ireland
Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading
London meet-up 2016
We had a lovely informal get together in Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY today. Six people with aniridia came along for coffee and chat about their condition. We met right after the excellent Sight Village event over the … Continue reading
What our logo looks like
It occurred to us that some people will never have (clearly) seen the Aniridia Network UK logo designed in 2011. So here’s a description and explanation of the logo: The overall design is a 2 dimensional, stylised, aniridic eye, including … Continue reading
Call for Aniridia Network Ireland
By Eleanor from Ireland Three weeks ago I went to the Aniridia Network UK Meeting 2016 in London, it was my first time and I thoroughly enjoyed meeting people with the same eye condition as myself. I had never before … Continue reading
Posted in Aniridia Network news, Patients' tales
Tagged Conference, event, Republic of IIreland, volunteering
3 Comments
Just when you thought it was all over
You’d think that after Saturday’s excellent conference we can all relax. Well yes one big to do list is in the bin but I’ve just written another one. Here it is: Create the online feedback survey and emailed it out … Continue reading
