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Author Archives: Aniridia Network
Down Syndrome Act could negatively affect support for WAGR
An alert from Genetic Alliance UK warned us about the potential impact of new legislation called the Down Syndrome Act. It raised the prospect of people with Down syndrome being treated better than others with similar learning difficulties, caused by … Continue reading
Internet & social media research study: participants wanted
Emily Sterling, a Masters student from the Cardiff University Centre of Medical Education, is looking for adults with aniridia to take part in a research study about their use of the internet and social media. Emily has provided the information … Continue reading
2022 Volunteer Awards
We rely completely on the brilliant people who use their spare time and skills to run our charity. We are so thankful for the efforts of all our volunteers and hence what they get done for our beneficiaries. To aknowledge … Continue reading
2022 Annual General Meeting
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Conference 2022
Our main event of the year took place online today. People from all arond the UK, Ireland and beyond joined via Zoom to hear and talk about various aspects of aniridia. There reactions were heartening: I’m very grateful for all … Continue reading
Annual Report 2021-2022
Read details of what our officials, members and supporters did as well our finances between 1 April 2021 and 31 March 2022 in the Aniridia Network Annual Report for 2021/22. See also the Aniridia Network financial statements and their independent examination … Continue reading
Meet ups for Aniridia Day 2022
Four gatherings of people affected by aniridia were held around the UK to celebrate this, Aniridia Day. Adults with aniridia hosted the get-togethers. Fellow patients, parents, children, came along to chat about life with our condition. Aniridia Network also bought … Continue reading
6th European Aniridia Conference
By Claire My daughter Laura, who has aniridia, and I set off for the conference early on Friday 3rd June to join other families seeking more information about this rare condition that many health professionals are unaware of. How heartening to … Continue reading
Posted in International, Parents' accounts
Tagged Aniridia Europe, European Aniridia Conference
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Book review: ‘Auditory Processing Disorder’ by Alyson Mountjoy
This book is written for parents and adults with APD, plus educational and medical professionals. Auditory Processing Disorder (APD) affects many people with aniridia. This book provides a lot of insight into the condition. It was published in March 2021 … Continue reading
2021 Volunteer Awards
We would be nothing without the amazing people who give up their time and use their skills to run our charity. We are extremely grateful for all our volunteer’s efforts and what they achieve from them for our beneficiaries. To … Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, awards, volunteering
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