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Author Archives: Aniridia Network
A car centric world is inaccessible for visually impaired people (World Car Free Day)
By Mike Today is World Car Free Day, when all around the world towns and cities allow people to experience streets free of motor traffic. It’s a great chance to re-imagine our streets around people. While not expressly an environmental … Continue reading
Annual General Meeting 2023
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, meeting, trustees
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Annual Report 2022-2023
Read details of what our officials, members and supporters did as well our finances between 1 April 2022 and 31 March 2023 in the Aniridia Network Annual Report for 2022/23. See also the Aniridia Network financial statements 2023 and their independent … Continue reading
Meet up for Aniridia Day 2023
Seven peoople with aniridia came to the pub in St Pancras Station celebrate Aniridia Day together this year. The youngest was 19, the oldest 67. After buying them welcome drinks there’s was lots of great chat including about about studying … Continue reading
A decade as Patron of Aniridia Network
In 2013 Veronica van Heyningen became Aniridia Network Patron. Having helped to appoint a new patron she reflects on the progress we’ve made together. Ten years ago when I took up the role of Patron in this wonderful aniridia support … Continue reading
The diverse functions of PAX6: How Veronica grew our understanding
Our Patron Veronica van Heyningen worked at the Medical Research Council for more than 35 years. In that time she and her colleagues in Edinburgh did pinoneering work to undertand the PAX6 gene. They were identified it as the gene … Continue reading
Meet ups for Rare Disease Day 2023
Seventeen people were at our get togethers last weekend to celebrate Rare Disease Day, in London and Cambridge. They came to meet fellow aniridia patients and relatives to chat about all aspect of aniridia. Andy hosted the Cambridge event in the … Continue reading
My first aniridia meet up
After moving to London, I stumbled across Aniridia Network (AN) and decided to sign up. All my well laid plans to get involved, however, fell to the wayside as I got distracted by PhD study, making new friends, and getting … Continue reading
Finlay is England Rugby Union mascot
A boy with aniridia served as the mascot of the England rugby team at their game with South Africa. He proudly led the team out on to the pitch at Twickenham today. Finlay’s godparent moninated him following a call by … Continue reading
Posted in Parents' accounts, Patients' tales
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Meet up & stall after/at Sight Village London
We held a wonderful meet up of people affected by aniridia in Kensington. It was after the Sight Village exhibition where we had a stall. It was a brilliant day and evening where we talked about all aspects of aniridia … Continue reading
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