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Author Archives: Aniridia Network
Results of research into the impact of sight loss between adults with sporadic and familial aniridia
Helen Campbell has recently finished studying for her MSc in Genetic and Genomic Counselling at Cardiff University School of Medicine, and works as an Eye Care Liaison Officer (ECLO) for RNIB. Prior to that, she worked in the charity sector … Continue reading
Posted in Patients' tales, Research
Tagged research, Conference, psychosocial, Cardiff University, Conference 2024, Helen Campbell
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Supporting children with aniridia in education
Gayle Johnson is a Qualified Teacher For Vision Impairment (QTVI) in the Vision Support Service at Dorset Council. Through her career in education as a Special Needs Coordinator and Senior Leader, and now in her current role as a QTVI, … Continue reading
Posted in Education professionals sharing
Tagged Conference, Conference 2024, young people
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National 3 Peaks Challenge raises £735
Gemma raised mountains of money for us by speedily climbing the three highest peaks of Scotland, England and Wales, in 24 hours. Here’s her story. I decided to take on this challenge in order to motivate myself to stay fit … Continue reading
Meet up in Kensington after Sight Village 2024
Twelve people joined us for dinner and chat about aniridia on 5 November. This included an American woman who has recently move to London for work and another long-lost member as well as several regulars. It was immediately after the … Continue reading
Four steps forward, two steps back …?
Permjit Bhachu is Information, Advice & Guidance Coordinator at the charity Focus Birmingham. At our 2023 conference in Birmingham last September, she gave a talk about one particular person she had been working with, who had endured a great deal of hardship … Continue reading
Living with Auditory Processing Disorder
Alyson Mountjoy is the founder of APD Support UK, which provides information and useful links for people affected by Auditory Processing Disorder, a condition that affects her son. She has also written two books on APD – one of which … Continue reading
Posted in Patients' tales
Tagged auditory processing disorder APD, Conference, Conference 2023
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Annual General Meeting 2024
The Aniridia Network AGM will be held online on 13 August 2022 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, Conference, Conference 2024, meeting, trustees
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Conference 2024
We held this great event online and it was completely FREE to attend. We had a great line up of speakers, to talk about aniridia related themes. From personal experiences to cutting edge research, education and leadership – something for … Continue reading
Annual Report 2023-2024
Read details of what our officials, members and supporters did as well our finances between 1 April 2023 and 31 March 2024 in the Aniridia Network Annual Report for 2023/24. Key points Thanks to the the amazing input by everyone who … Continue reading
Thanks to our retiring Medical Adviser Melanie Hingorani
Our long-time go-to for all medical queries, Melanie Hingorani, has retired from working as a consultant at Moorfields Eye Hospital and with us too. Her career had a focus on engagement and quality in eye healthcare, including answering our members’ … Continue reading
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