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Author Archives: Aniridia Network
Protected: New trustee Sarah reflects on her first board meeting
There is no excerpt because this is a protected post.
The doctor told me my newborn baby girl was blind
Have you ever been punched in the gut? Punched so hard that you can’t breathe, that you’re nauseous and you can’t think of anything but the shock? That’s exactly how I felt on December 12, 2011 when the doctor told … Continue reading
Sarah’s introduction
Sarah successfully stood for election to be an Aniridia Network UK trustee in 2012/13. She couldn’t be at the annual general meeting in person. This is the nomination statement she provided instead. I have aniridia. Over the years I have … Continue reading
Andrew’s introduction
Andrew successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person because he was busy “in the process of making homemade bread and cakes with a bunch … Continue reading
Nigel’s introduction
Nigel successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person. This is the nomination statement he provided instead. I have aniridia and grew up when aniridia … Continue reading
Conference 2012 review
“A fantastic and informative event” is how those who were there described the Aniridia Network UK Conference 2012. A mix of presentations, discussion time, formal elections and a social event – it was the biggest event we have staged to … Continue reading
Lois’s poem
Lois was inspired to write this poem during the Aniridia Network UK Conference 2012. What we see, is just the trunk of the tree. Competent and confident, in our own little way. No different from the king of Norway. Whether … Continue reading
Protected: Presentations from Conference 2012
There is no excerpt because this is a protected post.
Posted in Aniridia Network news, Education professionals sharing, Medical staff talking, Parents' accounts
Tagged Conference, fundraising, glaucoma, QTVI
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Donate to Aniridia Network UK via ebay
Do you buy or sell on eBay? Now you can and raise money for Aniridia Network UK at the same time. We’ve registered with Mission Fish – ebay’s charity partner website. So now you can sell an item on ebay … Continue reading
Sunglasses wearing dog has anirida
Isn´t this dog cute, with its sunglasses? She has aniridia! Rosa from the Spanish aniridia association happened to meet, Ana, a generous person who adopted this abandoned dog as her pet – nobody else wanted it because it had aniridia. It is now happy with sunglasses … Continue reading
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