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Author Archives: Aniridia Network
Befrienders who speak languages needed
The Aniridia Network UK Befriending Scheme has successfully created over thirty five buddy relationships in the last two years. We can only do this with the kindness of those of you who are willing to make contact with other families, who have … Continue reading
Drug company donates £1,000 to ANUK
A global biopharmaceutical company has provided a donation to ANUK for which we are extremely grateful. PTC Therapeutics is the company that discovered and is developing ataluren for the treatment of disorders due to a genetic nonsense mutation. Approximately 20% of patients … Continue reading
Posted in Aniridia Network news, Fundraising, Research
Tagged ataluren, donation, fundraising, ptc
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Assist research by joining a patient registry
It’s now easier than ever to assist research into aniridia and similar conditions. A patient registry has been set up and we encourage any of you with (with children who have) the following conditions to add your/their details to it. … Continue reading
Aniridia doesn’t stop Jessica doing all kinds of sports
ByJessica I am 21 living in London, have partial aniridia and have never let it stop me from any kind of sport. know some people get worried about sporting with an eye condition like this and am fully aware that … Continue reading
Change to how you can help ANUK by shopping on Amazon
There is an easy ways to raise money for us simply by shopping on Amazon.co.uk. It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading
Invitation to aniridia youth summer camp 2015 in Italy
Registration deadline 1 February 2015 Aged 15-25 and have aniridia? Parent or sibling of such a person? You are invited to a fabulous activity holiday in Italy with 80 others from around Europe. The camp will run 4-14 August 2015 and will … Continue reading
Posted in Aniridia Network news, Other agencies
Tagged Aniridia Europe, event, Youth In Action Summer Camp
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Marina wins £250 in our Christmas raffle
The first Aniridia Network UK nationwide raffle took place in November. Congratulations to Marina in London who scooped the prize of £250 worth of Love 2 Shop vouchers.. Marina is mum to young Cormac who has sporadic aniridia. Liz, our Fundraising … Continue reading
Buy tickets in our Christmas raffle
We decided that the generous donation of £250 in shopping vouchers earlier this year merited a special prize draw to raise funds for our future activities. In these difficult times we thought a pre-Christmas financial boost for the winner would be … Continue reading
Lois leads England Women Blind Cricket Team
Lois who has aniridia is captain of the England Women’s Blind Cricket Team. They are currently on tour in Nepal. Before they left, she and others were interviewed by BBC Radio 4 In Touch The Nepalese cricket team inspired the Cricket … Continue reading
Harry’s marathon raises £900 for ANUK
Harry is the brother of our Chair Katie and is a keen runner. He has always wanted to run a marathon and managed to get a place on the event in York. Aniridia Network UK was, of course, his charity … Continue reading
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